Get our new ebook "Woven Strong, Stretched Thin"

Why we believe we're more like elephants than zebras. Two EDS patient advocates share their lived experience in a new ebook series.

We are proud to introduce the first title in a bold new ebook series created by and for those living with connective tissue challenges:

Woven Strong, Stretched Thin: Understanding Connective Tissue-Related Chronic Conditions co authored by Maggie Buckley (Loeys-Dietz syndrome) and Christie Cox (Ehlers-Danlos syndrome)

This is not your typical medical overview. It is real talk from two seasoned patient advocates who know what it means to live in a body held together by overstretched rubber bands and misunderstood by the medical system.

Inside this first volume in the series, you will learn:

• What connective tissue actually is (and why it matters more than you have been told)

• The difference between EDS, HSD, Marfan syndrome, and Loeys-Dietz—and what unites us all

• How medical silos fail patients—and how we can bridge the gaps with education and community

• Why we are reclaiming the term "indefinite illness" to reflect lifelong, misunderstood conditions

• Practical metaphors (like bridges and bananas) to help you explain your body to yourself and your doctor

• Warning signs, comorbidities, and key takeaways for early detection and better self-care

Whether you are new to the diagnosis journey or decades into managing your symptoms, this series is designed to help you connect the dots across your multisystemic experience—and start living smarter and moving forward, not living the hard life of chronic illness.

Because thriving with a connective tissue disorder is not about “fixing” your body.
It is about understanding it, working with it, and finding power in community, knowledge, and advocacy. Dealing with it and healing in the ways you can, beautifully.

This is volume one of many. Think of it as a stitched-together survival guide for the bendy, the baffled, and the battle-worn.

Download your copy now available exclusively for ZU subscribers (or a one-time $5) and join us on this path toward turning invisible illness into invincible insight.

Subscribers Can Simply Access Your Copy
If you are already a paid subscriber to Zebras Underground, your copy is below. Or you can subscribe now and cancel anytime, including right after you download the ebook as a one time fee of $5. Or use your one time only free upgrade for access to this as the one free thing you can get from us.

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