Big News Zebras: EDS S.H.A.R.E is Going Underground & Leveling Up
Starting next week, a new platform for EDS news, Zebra Underground is officially going live and moving to a $5/month subscription on Substack—and here’s why that’s a win for you and the EDS community.
We’ve outgrown our current setup we’ve enjoyed produced and hosted by EDS S.H.A.R.E. and the monthly newsletter for EDS patients. You could say we’re like a joint that’s lost its stability, the free model can no longer support the weight of what we’re building. With rising costs for hosting, research hours, and content production, your support will keep our ligaments (aka: the newsletter, website, podcast, and database) strong enough to hold it all together.
Here’s what you’ll gain with your $5/month membership (discounted at $50/yr):
Full access to weekly Zebra Underground deep-dives into medical curious questions
Searchable archives to find insights fast (no more endless scrolling or email searches)
Well-researched articles focused on diagnosis (dx), treatment (tx) and prescription action (rx) topics you want to learn about
Exclusive access to our private podcast—raw, real talk for rare disease warriors
Priority topic requests—you ask, we dig (yes FAQs built for you)
Bonus breakdowns of medical research—decoded in human terms with links to research to back it up
Early access to tools, guides, and more coming soon from EDSshare.com
This isn't just a newsletter—it’s connective tissue for a scattered community. We don’t just publish updates; we stabilize the chaos, strengthen your knowledge base, and support those living with rare and chronic conditions through credible, no-fluff insights.
What else costs $5 a month that you won’t enjoy as long?
A single Starbucks drink with extra foam and regret
One fast food run that leaves you bloated and confused
A forgotten app subscription you meant to cancel
One avocado (maybe)
A cheap phone charger that will break in two weeks
Less than a tube of fancy toothpaste
Half a pack of flare-up Band-Aids
A bottle of electrolyte water that tastes like sadness
But $5/month for Zebra Underground?
That gets you deep medical insights, decoded research, private podcast episodes, and trusted answers from patient advocates who live this life.
It’s the best $5 your zebra self can spend. Support the mission. Fuel the fire.
Join us at $5/month on Substack at Zebras Underground: where rare meets real.